چکیده مقاله
The growing number of people suffering from chronic diseases such as cardiovascular diseases, respiratory disease, cancer, and diabetes, as well as their quality of life, is one of the challenges of the health system in the 21st century 1 However, chronic patients with respiratory failure CRF are considered as one of the priorities of the World Health Organization WHO because it affects millions of people worldwide 2 It is the third leading cause of death, with an annual mortality rate of higher than 9 5 million people in the world 3 Accurate statistics on chronic respiratory insufficiency CRI in Iran are not available; however, the mortality rate due to this disease was equal to 9 8% of all deaths in 2019 4 2CRI refers to a problem in the function of the respiratory system when it is unable to sustain arterial blood gases at an acceptable level It is classified into two categories, i e , hypoxemic, such as pulmonary fibrosis, and hypercapnic respiratory failure, including chronic obstructive pulmonary disease COPD , neuromuscular disorders NMD , and persistent asthma 5 6 In all types of this disease, patients continuously experience disruptions in their daily physical and functional activities, problems in their mental and psychological conditions, such as fatigue, fear, anxiety, isolation, dependence on others, depression, and social problems due to the progressive nature and exacerbation of respiratory symptoms 7 8 They always require long term drug use and oxygen therapy to improve the signs and symptoms of the disease affecting their quality of life 9 This leads to exorbitant costs in pharmacological/non pharmacological treatments, time expenditure, frequent hospitalizations, and many other problems in the family and community 10 WHO estimates that by 2050, the incidence of chronic diseases such as respiratory insufficiency and changes in the quality of life will increase with the growing population in Iran 11 Quality of life is defined as one’s perceptions of physical and mental status, level of independence, social relationship, interaction with the environment, and personal sets of beliefs and values 12 Correspondingly, health related quality of life HRQL , as part of the overall quality of life, comprises mental, emotional, social, and physical perceived well being and reflects the subjective and objective evaluation of patients and how they respond to the disease 12 13 Wilson and Cleary 1995 define it as being pleased and satisfied with one’s aspects of life, both affected by health and affecting the person's health 14 HRQL is one of the most multifaceted and essential concepts of clinical research on chronic diseases; researchers constantly investigate how to assess its various aspects with an appropriate instrument 15 Assessing this concept can improve clinical decision making, evaluating the quality of medical and nursing interventions, and monitoring the severity, progression, and prognosis of the disease 16 In addition, such instruments can lead to reliable results in measuring HRQL changes, effective treatment programs, predicting future outcomes, and policymaking in the health system of any society 16 17 Furthermore, they can contribute to the care and treatment of the patients by having discriminatory, evaluative, and predictive properties 16 The most common instrument used to measure HRQL in patients with CRI has been the3severe respiratory insufficiency questionnaire SRI , developed by Wendish et al in German in 2003 18 It was employed in several countries, including Finland 19 , England 20 , Portugal 21 , Japan 22 , Norway 23 , China 24 , and Spain 25 , due to the importance of cultural adaptation and validation in different research communities Nevertheless, measuring HRQL has been neglected in research, education, and clinics in our country Due to the importance of the growing incidence of respiratory insufficiency and HRQL, there is a need for local and specialized instruments, specifically adapted for the individual and social conditions of patients, facilities, existing treatment and care conditions, and culture Therefore, the present study aimed to determine the psychometric properties of the HRQL questionnaire in chronic patients with SRI
نویسندگان
Shohreh Kolagari
Phd of Nursing, Associate Professor, Nursing Research Center, Golestan University of Medical Science, Gorgan, Iran
Zahra Sabzi
Phd of Nursing, Associate Professor, Nursing Research Center, Golestan University of Medical Science, Gorgan, Iran
Mahmoud Khandashpour
Department of Internal Medicine, Golestan University of Medical sciences, Shahid Sayad Shirazi Hospital, Gorgan, Iran
Wlfram Windisch
Department of Respiratory Medicine, Kliniken der Stadt Köln gGmbH, University of Witten/Herdecke
Leila Teymouri Yeganeh
Graduate of Mathematical Statistics, Research Assistant, Nursing Research Center, Gorgan, Iran
Elyas Hosseinzadeh Younesi
Phd of Nursing, Associate Professor, Nursing Research Center, Golestan University of Medical Science, Gorgan, Iran
شیوه ارجاع
Kolagari, Shohreh and Sabzi, Zahra and Khandashpour, Mahmoud and Windisch, Wlfram and Teymouri Yeganeh, Leila and Hosseinzadeh Younesi, Elyas,1400,Psychometric properties of the Severe Respiratory Insufficiency Questionnaire (SRI): Persian version,Fifth International Conference on New Findings in Midwifery, Obstetrics, Gynecology and Infertility
ارائهشده در
مجموعه مقالات پنجمین کنفرانس بین المللی یافته های نو در مامایی، زنان، زایمان و نازایی20 آبان 1400