چکیده مقاله
Objective: The aim of this study was to review the studies that have investigated the impact of self care programs on people with rare diseases Background: Rare disease refers to any disease that affects a small percentage of the population In rare diseases, self care is an essential and inseparable part of treatment, and patients who are involved in self care have significantly improved clinical outcomes with better quality of life,less hospitalization,and longer survival Methods: To find relevant studies, a search was conducted in the following databases: SID , Magiran,and English language databases of PubMed, Scopus, ProQuest, ScienceDirect, and Google Scholar 82 articles were found through the search in the databases and the list of articles Based on the study inclusion criteria, 12 articles were finally selected and reviewed Findings: Supporting self care in these people is an intrinsic process to reach an agreement with them based on their perspectives to sensitize them to create responsibility and motivation in making this change Conclusion :Since the diagnostic and treatment for many of these rare diseases can be time consuming and fraught with numerous challenges, self care education through nursing profession can significantly impact both the patient and their family in reducing the burden associated with the disease
کلیدواژهها
نویسندگان
فاطمه زهرا سلامت
MSc, Nursing Department, School of Nursing and Midwifery, Shahrood University of Medical Sciences, Semnan, Iran
فاطمه رضایی
PhD, Assistant Professor, Nursing Department, School of Nursing and Midwifery, Islamic Azad University, Babol Branch, Mazandaran, Iran
Arezoo Kordian
Fatemeh Zahra Salamat MSc, Nursing Department, School of Nursing and Midwifery, Shahrood University of Medical Sciences, Semnan, IranFatemeh Rezaei PhD, Assistant Professor, Nursing Department, School of Nursing and Midwifery, Islamic Azad University, Babol Branch, Mazandaran, IranAkram SanagooHoma Vejdani VahediLeila Jouybari
Akram Sanagoo
Fatemeh Zahra Salamat MSc, Nursing Department, School of Nursing and Midwifery, Shahrood University of Medical Sciences, Semnan, IranFatemeh Rezaei PhD, Assistant Professor, Nursing Department, School of Nursing and Midwifery, Islamic Azad University, Babol Branch, Mazandaran, IranArezoo KordianHoma Vejdani VahediLeila Jouybari
Homa Vejdani Vahedi
Fatemeh Zahra Salamat MSc, Nursing Department, School of Nursing and Midwifery, Shahrood University of Medical Sciences, Semnan, IranFatemeh Rezaei PhD, Assistant Professor, Nursing Department, School of Nursing and Midwifery, Islamic Azad University, Babol Branch, Mazandaran, IranArezoo KordianAkram SanagooLeila Jouybari
Leila Jouybari
Fatemeh Zahra Salamat MSc, Nursing Department, School of Nursing and Midwifery, Shahrood University of Medical Sciences, Semnan, IranFatemeh Rezaei PhD, Assistant Professor, Nursing Department, School of Nursing and Midwifery, Islamic Azad University, Babol Branch, Mazandaran, IranArezoo KordianAkram SanagooHoma Vejdani Vahedi
شیوه ارجاع
Salamat, Fatemeh Zahra and Rezaei, Fatemeh and Kordian, Arezoo and Sanagoo, Akram and Vejdani Vahedi, Homa and Jouybari, Leila,1402,The Impact of Self-Care Programs on People with Rare Diseases: A Review Study,The 15th International Conference on Health, Treatment and Health Promotion
ارائهشده در
مجموعه مقالات پانزدهمین کنفرانس بین المللی بهداشت، درمان و ارتقای سلامت1 دی 1402