چکیده مقاله
Background: Leukemia, as a debilitating and life threatening disease, not only jeopardizes children's physical health but also leaves profound consequences for parents Active participation of parents as the primary caregivers in the treatment journey, particularly during the transition to home care, requires adequate knowledge and skills to manage complex caregiving tasks Objective: This study aimed to explore the information seeking behaviors of Iranian mothers caring for children with leukemia during the transition to home care Methods: This qualitative content analysis with a conventional approach was conducted in two pediatric subspecialty centers in Iran between May 2023 and June 2024 Fourteen mothers of children with leukemia were purposefully selected and engaged in in depth, semi structured interviews Data were analyzed using Graneheim and Lundman's 2004 method The study followed the consolidated criteria for reporting qualitative research COREQ Results: Five main categories were identified under the overarching theme of Conscious striving for caregiving empowerment”: 1 mothers' vigilance and continuous effort to learn, 2 sharing experiences with peer mothers, 3 seeking reassurance through interactions with professional caregivers, 4 cautious use of virtual spaces, and 5 distrust toward caregiving advice from non expert relatives Conclusion: The findings revealed that mothers of children with leukemia play an active and vigilant role in searching, critically evaluating, and applying caregiving information during the transition to home care The results highlight the significance of healthcare professionals as trusted sources of information, and peer mothers as valuable experiential and emotional supports These insights can inform the development of tailored educational and supportive programs for parents, thereby improving home care quality and child health outcomes
کلیدواژهها
نویسندگان
Nasrin Ghanbari
Ph D Student in Nursing, Department of Nursing, Faculty of Medical Sciences, Tarbiat Modares University, Tehran, Iran
Eesa Mohammadi
Professor, Department of Nursing, Faculty of Medical Sciences, Tarbiat Modares University, Tehran, Iran
Mitra Khoobi
Assistant Professor, Department of Nursing, Faculty of Medical Sciences, Tarbiat Modares University, Tehran, Iran
شیوه ارجاع
Ghanbari, Nasrin and Mohammadi, Eesa and Khoobi, Mitra,1404,"Mindful Journey" Exploring the Informational Behavior of Mothers of Children with Leukemia During the Care Transition to Home: A Qualitative Study,37th International Congress on Pediatrics,Tehran
ارائهشده در
مجموعه مقالات سی و هفتمین کنگره بیماری های کودکان17 مهر 1404 · تهران